Justin and I want to thank all of you who attended Gavin's fundraiser Saturday night. The show of support was overwhelming. We are truly blessed to have so many wonderful people in our lives. All of your generosity and thoughtfulness is greatly appreciated and we will never be able to thank all of you enough.
(Many thanks to everyone who helped organize and run the evening!!!! You are all amazing and it couldn't have happened without you)
Update on Gavin...
He is in Moderate Care, receiving continuous feedings over a time period of 3 hours. They are giving him 16cc/hr for 3 hrs. Gavin needs to plump up a bit, so they are increasing the calories in the milk with powered formula. Hopefully, he is able to keep the feeds down, should he continue to spit up as much as he has been, which can be as much as 1/2 of his intake, they will have to extend his feeding tube to his intestine so the feeds actually stay in his system and he can gain weight. We are hoping that he overcomes this without having to take that step backwards. So right now that is what we are concentrating on. All of this is very common in cardiac babies. None of the feeding issues were a surprise to me, thanks to the babycenter website group, "babies with congenital heart defects". I first learned about the feeding obstacles from the group and I just hope my lil Gavin overcomes them quickly.
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