We found out today that all of the chromosome tests came back "normal", there are no signs of Digeorge or any other syndromes. Our baby is fine. :)
After days of observing how he was eating, Justin and I decided it was okay to remove his NG tube.
We removed the tube June 26th (papa's birthday)and we haven't had to replace it. He is eating so well, now taking up to 4oz a feeding, between 3-4hrs. He had his pediatric appointment yesterday and the little porker weighed in at 8lbs 14oz. Our little guy is eating like a superstar. We still thicken his formula with Simply Thick Nectar to avoid aspirating. His repeat swallow study will be in July. Hopefully, it can be scheduled on the 15, the same day as his cardiologist appointment.
We removed the tube June 26th (papa's birthday)and we haven't had to replace it. He is eating so well, now taking up to 4oz a feeding, between 3-4hrs. He had his pediatric appointment yesterday and the little porker weighed in at 8lbs 14oz. Our little guy is eating like a superstar. We still thicken his formula with Simply Thick Nectar to avoid aspirating. His repeat swallow study will be in July. Hopefully, it can be scheduled on the 15, the same day as his cardiologist appointment.
Gavin is such a miracle baby! We thank all of you for your prayers and support during the last couple of months. God had truly heard the prayers from all of our family, friends and prayer warriors.
No comments:
Post a Comment