Echo review~ and other news

Today Gavin had his 2 week follow up from his cath. procedure. He had a groggy echo done, they didn't sedate him, he was way to awake so the just gave him some crazy nasal inhalant to chill him out and it worked.

Good news, wait let me rephrase that... Great news, there were no changes from the echo he received the 2 weeks ago. I'm not clear as to how they measure the pressure from an echo but they got it somehow and the pressure of his right ventricle is 40% which is the same as 2 weeks ago.  He goes back at the end of July for another echo and we should get the clear for our much needed family vacation.

He is definitely in a growth. He measured almost 34 inches long/tall today and still weights 24 lbs. He also started walking yesterday too!! He walked to my beautiful cousin McKenzie, of course, how could he resist her, she is such a doll! He took about 10 steps to her it was so awesome. Even with all of his down time with being sick and whatever other delays there may have been he is doing so well with everything and I just knew he would walk in no time. Although, I am thrilled for him, I am utterly exhausted just thinking about all the joy of following him around, picking him up off the ground, kissing his scraps and bruises and letting him go again and again.

Oh did I mention I probably wont be able to bend over soon enough being that our little Owen is just a growen! ( baby # 2 ) I guess you could call this our official announcement to those that didn't already know. We are expecting our second child late October, Owen Daniel. I am 22 weeks pregnant now and getting bigger by the minute and Gavin is getting faster by second of course. 

We are so glad today was good news. We are hoping the stent continues to do its job for as long as possible and that there are no more surprises in Gavin's future.

No Surgery, just yet!

Gavin was scheduled for his stent procedure and heart surgery (if needed) for June 10th. We took him in for his stent procedure at 7am and by 10:30am we were told the operating room was cancelled and that the cardiologist and surgeon were happy with the stent placement and its effectiveness on his right ventricle pressure so we are holding off on his surgery.  The stent could last anywhere from 6 months to 2 years. I know what a window that leaves us. The surgeon said if Gavin gets 6 months out of it, she will take it! Gavin is going through a huge growth spurt right now (if you have seen him lately you would agree!) and in 6 months she is confident that she could place a good sized conduit which is the main goal to limit the number of surgeries he will have.

Follow Up Cardiologist Appt

Today was Gavin's follow up with his cardiologist. We discussed his surgery date and he had labs done.  His surgery date has been moved from Monday, June 13th, to Friday, June 10th. Apparently, the brainstorming didn't stop with the decision for his surgery that was made a couple of weeks ago.

We're going home!

FINALLY! We are being discharged today.
His lab results are still dropping. His AST are 77 ALT 400'S but we have lab orders to have his blood drawn from outside U of M.  He will be on asprin until his surgery, he has a follow up appointment May 19.

I am so excited to be going home with our little bundle of energy. 

No we didn't paint it during our stay but we thought it was cute! Mom, Dad & Gavin

We will be back soon enough.

Not home yet, but soon we hope.

We didn't get go home today.  He had his echo this morning. We didn't see the images but apparently he doctors didn't get all the information they wanted from that test, so they are going ahead with the CT Scan tomorrow morning.  With the CT they hope to get a clearer image of the pseudo aneurysm and the stent along with the area around the heart and lungs (i guess) The results of the test may move the surgery date up from June 13th.  I don't suspect having to stay in the hospital until that time come.  They are also continuing to watch his liver enzymes. 

Labs. AST in the 280's from 193 yesterday, 2nd day of an increase since we've been here.

         ALT dropped to the 800's since 954 yesterday. BONUS

Weight 10.7 down from 11.1 yesterday. Considering they dry weight they are looking at is the weight he came in at, which he was retaining fluid. So I'm assuming they are going a little under the 11.4. I'm assuming because I can't get a clear answer.  I know they want to keep the fluid off of him but Im not sure why twice a day rather than once when he's already down.

Other than the echo, its been an uneventful day.  I can't speculate when we are going home, since you can tell that has already changed so much since we've been here, which is quite common.

There's that smiling face, we've missed so much!

Mommy and Gavin sat in the courtyard for awhile today.
Yet another beautiful day with my beautiful baby boy!
Daddy went back to work today, we really missed him!

He couldn't be any cutier!
Gavin is laying with the quilt the women's ministry "Quilts of Compassion" dropped
off on Mother's Day. A prayer was said with each stitch and each little knot that was made.
Mommy and Daddy got a purple quilt, Im thinking the purple is for hope, it's so pretty!
I'll be sure to post a pic of it soon.

May 10th

Another great night for Gavin. He has been eating like a champ, it seems as though he hasn't stopped eating since they removed the vent. He is showing his personality more and more.

His liver enzymes, the AST 193 up from 148 his ALT 954 down from 1182. The doc didn't think that was alarming. We will just watch them and if they go up again tomorrow then I think they will look more closely to them.