There's that smiling face, we've missed so much!

Mommy and Gavin sat in the courtyard for awhile today.
Yet another beautiful day with my beautiful baby boy!
Daddy went back to work today, we really missed him!

He couldn't be any cutier!
Gavin is laying with the quilt the women's ministry "Quilts of Compassion" dropped
off on Mother's Day. A prayer was said with each stitch and each little knot that was made.
Mommy and Daddy got a purple quilt, Im thinking the purple is for hope, it's so pretty!
I'll be sure to post a pic of it soon.

May 10th

Another great night for Gavin. He has been eating like a champ, it seems as though he hasn't stopped eating since they removed the vent. He is showing his personality more and more.

His liver enzymes, the AST 193 up from 148 his ALT 954 down from 1182. The doc didn't think that was alarming. We will just watch them and if they go up again tomorrow then I think they will look more closely to them. 

Mother's Day

Happy Mother's Day!  Gavin's liver enzymes continue to drop. He is on Lasix once a day. Other than that, today was a day of spending time with my family. 
Gavin gave us a few moments of comedy, letting us all know that he's still a ball of fun and ENERGY! I can not tell you how wonderful it is to see that beautiful smile.
We met a nice couple who attends our church, Metro South. They came to the see us today and set up a skype session for Gavin's dedication.  What a wonderful experience.  We finally dedicated our little baby boy to the Lord. We owe everything to him!  Three people also showed up at Gavin's bedside with prayer blankets, one for Gavin and one for Justin and I. They are so beautiful and soft.  I will post pictures of them soon. 

Tomorrow he is scheduled for an echo and he is to get a CT Scan, time is still to be determined. Most likely, discharge the day after these tests. So we really don't have a definite discharge date, but we are expecting early this week. I can't wait to go home so we can relax and allow our little guy time to relax before his big day in June.  There is no such thing as relaxing in the hospital.

Sat May7th.

Gavin's numbers are great.
Liver AST 1200'S  from 2100's and ALT 220 from 600
His states are great. He is off air. They did put him back on diuretic, his weight went up past his dry weight. to about 11.46, which means he wasn't ready for such an aggressive transition from the diuretic to nothing.
So he is getting it a few times today, overall his swelling has gone down.

He is getting a CTScan and since they don't do them on Sundays, Im assuming he will be here to atleast Monday, possible Tuesday. They are watching his electrolyes, they've been low as well as his phosphates.  So all and all he will be discharged in the next few days. His surgery is schedule for June, we will get a set date upon our discharge.  The surgery is sooner than we all anticipated originally (3-4 years of age) but this is happening for a reason. 

Friday May6th

We've all had a pretty busy day today.  Gavin has been move from PTCU to Moderate Care, it would have been the General floor but there wasn't a bed available. 

His liver enzymes continue to drop significantly! Stopped all diuretics.  Feeding tube is out. He continues to take the bottle.  We will know soon if he is being discharged this weekend.  The plan is to have his surgery scheduled for next month. This will allow Gavin to recover as much as possible before he has his heart surgery. 

He looks so good compared to the last week.  Taking him home is going to be scary but atleast we will all be comfortable.

We will update when we know for sure what is going on. 

May 5th PM Update

Im so sorry I forgot to inform you guys on the liver enzymes earlier.
His AST went from 2283 yesterday to 1359
His ALT went from 3179 yesterday to 2824, docs are pleased with the direction of everything.

He was extubated at 3pm this afternoon and as you can imagine, it was so wonderful to see his beautiful face again.  He is breathing beautifully on his own. They have since taken him off his BP meds and Adevan (spelling). He is receiving a steroid to help prevent his throat from swelling due to the intubation so that medicine does increase his BP but not to alarming levels. He was able to drink from the bottle tonight and he was so excited to see a bottle. He took 6 oz like a champ.

Still no date for his surgery as of yet, there is still debate.
We are very happy with the direction things are going. We should be able to hold him tomorrow.

Our church is having their baby dedication ceremony on Mother's Day. We were scheduled for the 9:30 service but due to is stay at the hospital we are going to miss that. However, we were able to work out skypeing the dedication service from his hospital bed for the 3rd service, We are so happy we aren't going to miss this years ceremony.
Hopefully we will have more good news to share with you tomorrow.

Thursday AM Update

 
He looks GREAT! His weight is down to 11.6k from his dry weight of 11.4 (25.5lb-25.1lb) so they backed of Lasix(diuretic) from every 6hrs to every 12. They never started the second diuretic. 


He is taking 1oz/hr by continueous feed. They will try PO feeding(mouth feeding) after he is extubated, waiting  4 hrs after extubation to feed him, just incase they have to reintubate.  

He's been sprinting on the vent this morning and they are going to sprint again at 1pm and if his blood gases are good they will extubate around 3pm. They have to wait 6 hours after his last feed, so they stopped his feed this morning at 9:30am while we were back there.  

Decreased his blood pressure med. Miliranone, may remove it after extubation.

White cell count down to 6.4

Abdomen ultrasound later today to check for possible clots, they are always possible after all the internal trama he has experienced. 

They will check to see how his blood clotting, he's been given plasma because his blood has been thin.

Removing his adevan after his extubation.  

All and all hie looks fantastic! His swelling is down significantly.  You can see creases in his eye lids. :)
We are going to have a good day, I can feel it :)
xoxo's